WELCOME TO THE COMPLEX CARE MOM

Thank you to all of our readers for continuing this journey with us. A journey that was unexpected, difficult to begin, hard to envision,...

“Oh look Livi!” I would say. Other times I would show Livi a toy, “This is Mr. Giraffe!” If Livi cried while I stepped a few feet away I...

With each new post there is more exciting information and new updates of Livi’s progress being documented as her diagnosis unveils itself...

In February of 2023 Livi had her feeding tube surgery, she was now getting nutrition to meet her growing needs. In March she began...

I had taken time off from writing, between Livi and her sister Mia our summer schedule was extremely full. Livi started a very rigorous...

The days are long but the years are short. How true this rings to any parent. The days were long and are still long as we continue on....

Discharged from the hospital we began our journey home. Livi needed supplemental oxygen to breathe, something as a parent of a newborn...

Joy is coming. This is a story of our hard times, but this is not a sad story. Livi has life, an entire village of people who light up at...

So the geneticist had given us the news, but what now? What comes next? He recommended Livi see all specialist to determine treatments....

We often get asked the general infant questions, “oh does she sleep all night”, “what time does she wake you to feed”, etc. As we share...

I started this blog to connect with others and bring awareness and normalcy to the children that do not walk, run, or talk at the same...

“I don’t want this to define Livi, she is more than a diagnosis more than a stat. But I do want to encourage others, continue to build a...